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The board voted Sept 2006, not to host the

awareness-screening this September.

We will have our annual meeting, following the support group meeting to be held in September.

 

 

2006 Melba "Bandy" Masters Memorial

Myasthenia Gravis Awareness Screening

Was Held Saturday,

 September 16, 2006 in Lubbock, Texas
 
 

Jaya R. Trivedi, MD

University of Texas Southwestern Medical 

Center at Dallas was the Visiting Clinician for our screening. 

Dr. Trivedi presented the program for the Lunch and Learn Segment of the day.  Her presentation include basic facts on MG and updates on new medications and research.

 

For information on future screenings, please call

Abilene - Lajuana Miller - 325-554-7038

 El Paso - Myrna Rasmussen - 915-581-4029

Lubbock - Coleen Shinn - 806-749-3126

or Marvin Burnett - 806-894-6906

 

 

 

Click here for pdf file of map.

 

 

Click here to read about the history of the memorial screening and also to view a tribute to Everett Masters, founder of the Northwest Texas Chapter

 

 
     
     

MG Awareness Screening Held

 September 17, 2005 in El Paso, Texas
Was a Huge Success!

 

A Special "Thank You" Goes To 

 

Sharon P. Nations, MD & Jaya R. Trivedi, MD

Of The University of Texas Southwestern Medical 

Center at Dallas who were the Visiting Clinicians

 

 The 1st MG Awareness Screening held in El Paso, Texas was a huge success.  The Chapter is so thankful to Dr. Nations and Dr. Trivedi for traveling way out "west" to conduct this event.  These two dedicated doctors saw 21 patients of which 5 were diagnosed as definite MG, 2 as probable MG, 2 as not having MG, and 12 who were follow-up MG patients.

 

A word of congratulations goes to the El Paso Support Group leaders, Jay and Myrna Rasmussen, and all of the other members of the group for their role in making this Awareness Screening a success.

 

REPORT ON 1ST ANNUAL AWARENESS-SCREENING EL PASO, TX

 

The following is a brief summary of the wonderful experience Sept 16th, 17th, and 18th as the NWTC sponsored our lst awareness-screening "out of our comfort zone".

 

CONGRATULATIONS to the FANTASTIC SUPPORT GROUP in El Paso, under the leadership of Jay & Myrna Rasmussen, we had a great Awareness-Screening, seeing 21 patients. We had patients from Corpus Christi, San Antonio, Lubbock, and the El Paso area. As with most new "adventures" we were a little apprehensive. This is the first time we have ventured off the South Plains of West Texas. The morning of Sept 16th, Lowell & Margaret McBroom, made their first stop to pick up Patsy Colquitt, and then to drop by and pick up me, and we headed for Levelland to pick up Marvin & Jimmi Burnett. The journey to El Paso has begun. Lowell was the designated driver, poor fellow, 5 "back-seat drivers". He is a great chauffeur. and good sport. Just imagine 2 "mature men" and 4 "mature women". Need I say more!!!!!!!

 

Dr. Sharon Nations, MD and Dr. Jaya R. Trivedi, MD were our guest clinicians from The University of Texas Southwestern Medical Center in Dallas. They are both Neuro-Muscular specialists. The first appointment was 8:00 am Saturday 17th, and we were booked solid until 2:00. The doctors had to leave to catch their flight back to Dallas. They saw 21 patients, and 5 were diagnosed as MG, 2 probable MG, 2 as not having MG, and 12 were follow up patients of the doctors. After the luncheon, provided by "Leo's" (excellent food) the doctors spoke and then we had a question and answer

session. Luncheon was sponsored by Accredo, and we are very thankful for the knowledge that was provided for all attending. Special thanks to Dee Robertson and "Robert". ARJ Infusion Services were also in attendance and a sponsor. Representatives Katie and Tinsey Giregg were available to assist patients and families. As we are all aware, "MG patients have millions of questions". We do appreciate our sponsors and their knowledge. Thanks for the hospitality of Los Palomos Medical Center.

 

THANK YOU MYRNA & JAY. Your many years of dedication and hard work to get the El Paso group organized and provide support and information is greatly appreciated. Thank you for the many fund raisers you have organized and the MG patients you have "touched".   Thank you Liz, Mitch & Lisa, and an especially heartfelt thank you to the nurses.   A heartfelt http://www.nwtcmg.org/donations through the years that helped to make this MG Awareness Screening possible.  God Bless each of you.

 

Sunday AM, Our navigator Marvin, and Lowell, thought we should take a different route home. Excellent idea, not as much traffic as I-10. Trip was very enjoyable, and worth all the "fatigue".

 

As chairperson of the NWTC I must take the time to tell each board member what a pleasure it is to have the opportunity to work with each of you. I appreciate the time and support "we" give to one another. This trip of "6" board members was truly an enjoyable 3 days of great fellowship and I treasure each moment. 

 

Thank you,

 Coleen

 

Note:  The Northwest Texas Chapter provides services to a large portion of Texas.  In order to better serve all MG patients in our Chapter area, the Board voted to alternate the Annual MG Awareness Screening between the Lubbock location and an El Paso Location. 

 

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Everett E. Masters, founding member of the Northwest Texas Chapter, was honored at the Melba “Bandy” Masters Memorial Myasthenia Gravis Clinic on September 8, 2001.

 

After Melba lost her battle with MG on February 16, 1961, Masters established in her memory a free clinic for the diagnosis and treatment of MG that was held for the first time on November 14, 1961.

 

     

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Everett and Melba Masters received the charter from the Myasthenia Gravis Foundation of America, Inc. for the first chapter “west of the Mississippi” on July 30, 1956.   Masters’ leadership and dedication of over 40 years service to the chapter has served as an inspiration to all of us who have joined with him as we strive together to achieve a “World Without Myasthenia Gravis”!

The Melba "Bandy" Masters Memorial Clinic for the diagnosis and the treatment of Myasthenia Gravis has been held at the Hi-Plains Hospital, Hale Center, Texas, every fall for the past 40 years. This clinic was co-sponsored by the hospital and the Northwest Texas Chapter of the Myasthenia Gravis Foundation of America, Inc.  

Everett E. Masters, Founder

July 13, 1913 - August 29, 2003

Click Here to View Tribute to Everett Masters

                                                         

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Melba's Story

Those attending the clinic through the years may have a copy of "Melba's Story" but there are many who may not be familiar with this special lady in whose memory we hold the MG clinic each year. It is an inspirational story sharing Melba "Bandy" Masters’ experience with MG and the founding of the Northwest Texas Chapter.

Everett E. Masters and his wife Melba Bandy Masters, the first person in the South Plains area diagnosed with Myasthenia Gravis founded the Northwest Texas Chapter of the Myasthenia Gravis Foundation of America, Inc. In essence, our history begins as far back as 1933 when this lovely couple met. Everett tells the story of his wife's fight with MG in a simple narration entitled “Melba's Story". The following is a summary "Melba's Story".

Melba and Everett married six months after they met in spite of his telling her early on that he was not the “marrying kind” and for her to not get serious. In reading “Melba's Story” you have no doubt that this chapter was founded also as a result of the strong religious faith of this couple. Everett expressed that from the very beginning of their relationship he “was impressed with Melba's great love for the Lord.... and her desire to serve God in all things”.

The Master's had two sons, Wesley in 1937 and Jesse in 1940 just before World War II began. Though many of Everett's family joined the armed forces, he was left behind on the farm to “produce food and fiber for our war needs.” He states that Melba helped with the farm work and both boys were driving tractors before they were old enough to go to school. Melba was also working with their church organizing a ladies' group and served as an officer of this group on the district level, concentrating in the area of children's work. It was during this very busy time of her life that Melba began having weak spells.

The doctors in numerous hospitals throughout Texas would put Melba through their clinics and then call Everett into their office and say, “Mr. Masters, there is nothing wrong with your wife. She only thinks she is ill.” They brought Melba back to Hale Center where Dr. Chalmer diagnosed her with Myasthenia Gravis. At the age of 36, Melba was told she would have six months at the most to live. Since the government was sending Dr. Chalmer back into the service, Melba was sent to Scott and White Clinic in Temple to start her on a medication that might help her. The doctor there also confirmed that Melba would die in a very short time.

After several weeks in Temple, the Masters returned to Hale Center and started seeing Dr. Foster who had replaced Dr. Chalmer. Dr. Foster had treated other MG patients and said he would do all he could for Melba. The disease continued to progress and they were having to use twice as much medicine as they had at first. They once again were facing the reality that Melba had a short time to live. At this time, the boys were 13 and 10 years old, and Everett wrote “Melba began to pray and ask God to let her remain with her family until her boys were grown...She promised that if He would let her remain until then, that she would not complain of the pain or the inconvenience. And I promised God that I would take care of Melba, and not let her become a burden to society.”

Over the years Melba would go to wherever the new drugs were that promised hope for her disease. Everett learned how to administer the drugs and they would return home. One drug that seemed safer and was helping Melba better than any they had tried, was discontinued because it was experimental and not produced in this country.

During this time, the Masters learned about the National MG Foundation which was organized in 1952. After learning about the National MG Foundation, the Masters began work on setting up the Northwest Texas Chapter at Hale Center. They received their charter in 1956. They learned of other MG patients through their efforts and set up a “drug bank” at the Hi-Plains Hospital in Hale Center that was providing medicine for patients in about four states. Melba enjoyed corresponding with these patients whenever possible.

Everett writes, "We were living one day at a time, and enjoying every bit of it. It was so wonderful, living with a person so dedicated to the Lord. She was so sweet and considerate of others. There was never a day went by, that she did not thank God for Dr. Foster and myself, because she believed both of us were being led by God in caring for her. Of course, I received far more than I gave during those years. It was such an opportunity for me.”

Melba lived to see her sons reach maturity. Wesley married in 1959 and their first grandchild was born the following year.  Jesse was engaged to be married and both boys were attending Texas Tech University.   I don't know how else to end Melba's story without just quoting how it  was  stated by Everett.

“Living became so difficult for Melba that every breath was an effort, for she was getting so tired, in spite of the new medicine that we had gone to Indianapolis to receive from Dr. J. E. Tether. Melba was no longer able to continue the long struggle for life against MG, and on the morning of February 16, 1961, she passed away quietly, at the hospital in Hale Center, attended by our Dr. Foster and several of the nurses we had learned to love so well during the ten years they had cared for her.”

Everett Masters continued to be involved with Myasthenia Gravis work in the Texas Panhandle and also at the national level. In 1962, Everett started "The Melba Bandy Masters Memorial Clinic" in memory of his wife. The Masters family set up a grant to support the MG clinic which has been held annually since that date. Dr. J. E. Tether, the doctor who had gotten Melba the last new medicine that she tried, came from Indianapolis to Hale Center for almost 30 years to conduct the Melba Bandy Masters Memorial Clinic. Dr. Tether retired in 1989 and passed away January 21, 1997. Everett, though nearing 90 years of age, continues to serve as a Trustee on the Board of the Northwest Texas Chapter.

What a privilege it is to be a part of a Chapter founded by such a special couple. They both will continue to be an inspiration to many MG patients and their families and friends in the years to come. May we strive together to carry on the good work Melba and Everett began.

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