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Edyth "Edie" Ellen Brooks was born on April 25, 1966. She was an active, healthy child until 1971 when her parents began to see signs that something was wrong. Edie was diagnosed with MG in the summer of 1974 and it was determined that she needed a thymectomy. Edie went throughout the whole ordeal of confinement, tests, and surgery with great courage and determination. She was home from the hospital only a few days when Edie asked to return to school and her friends. She was able to catch up on her school work and finished the school year with her classmates. Though she loved soccer, MG kept Edie from playing. She would, however, be on the sidelines cheering for her friends whenever she could. Edie was a very happy child even though much of her life was spent battling MG.

         
         

In March of 1976, Edie came down with the flu and went into a respiratory crisis and then a coma. God saw that Edie had suffered enough and took her in His care on March 24, 1976, one month before her 10th birthday.  That was 30 years ago. Now there are medicines and treatments  that the doctors didn't have 30 years ago that could have helped Edie.  Edie's parents have a fund in memory of Edie and the money is used to help make annual MG screenings possible by the NWTC.  We want to always remember Edie and are thankful that her parents are still helping MG patients today.

         
         

Having MG was no Fun for Edie just like it is no fun for many of you with MG.  Even simply things can be hard to do....our MG party bull frog has droopy eyes, no smile and he's having a hard time blowing his party favor.  Our party frog is so weak he can barely open his eyes!  Have you ever felt like that?

                                             

Research and new treatments make it possible for MG patients to get better. 

Click our party frog above and see how much better he is

now that the doctors have new treatments for MG!

 

My friend Edie wasn't as fortunate as MG patients today... she only lived to be 10 years old.

This makes us sad.

 But that was 30 years ago.  If Edie were here right now, she would be so excited to learn how much the doctors can do today to help YOU with your MG.

In fact, she would be turning cartwheels just like my MG bull frog friend from the log can...the doctors have made him all better.  Click on the frog on the log to see how much better he feels now!

 
Edie's mom wrote a long story about Edie.  It is on the MG STORIES  page.  Tell your mom and dad so they can read about Edie, too.

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